On 10/09/2008, a few hours after he was born; Jackson was diagnosed with DILV, CoA, TGA, VSD, ASD, PS, Straddling Right Atrioventricular Valve and Hypoplastic Right Ventricle. I was shocked because all of my ultrasounds were normal.
Jackson's CHOC transport team came to the rescue just in time to stabilize him and rush him to the hospital. I was discharged a few hours behind them and went home to pull myself together.
The following day I met up with my Father, Husband, and Dr.Chang (Chief of Cardiology) to go over Jackson's condition and schedule him for surgery.Our little rock star had surgery 3 days later. A coarctation repair was done and a PA band put in place by Dr.Gates; it was a total success. He recovered well but we had a hard time getting him to eat again. He was discharged 9 days post-op.
The following week we had an appointment with our Pediatric Cardiologist Dr. Renuka Peterson who is the greatest. She answered all my questions and showed a great deal of care for my little guy.
Jack did well up until New Years, at which point went back to CHOC for the Glenn and an Atrial Septectomy; another successful surgery performed by Dr.Gates. Unfortunately, a day or so post-op he developed Chylothorax so we had to stay in the hospital a little longer than last time; 11 days.
Since recovering from the Glenn Jackson has been thriving, he is now 7 months old and is 75% weight and 100% height. Dr. Peterson is still Jackson's cardiologist, I have to give her a lot of credit. I couldn't have known what to do if it wasn't for all of the valuable time she spent working with us to make sure we could make it on our own.
Thanks for taking the time to come to this web page and read how CHD affects the lives of these wonderful Children. Please support the Research and awareness of Congenital Heart Disease, the #1 birth defect in America.
Jacqueline Bates Turrey